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How does the United States define a rare disease?

When Is Rare Disease Day Celebrated?

Rare Disease Day

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Fun facts about rare diseases and rare disease day.

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Questions 12

Answers

1
When Is Rare Disease Day Celebrated?
April 1
February 28
March 1
February 29
2
How does the United States define a rare disease?
It affects fewer than 100,000 people.
It affects fewer than 200,000 people.
It affects fewer than 50,000 people
It affects fewer than 25,000 people.
3
What is the official mascot of rare disease patients?
Tiger
Zebra
LLama
Owl
4
True or false: Newborn screening is an important issue for rare disease advocates.
True
False
5
When did Rare Disease Day go global?
2002
2005
2000
2009
6
How many rare diseases have been identified?
20,000
10,000
3000
7,000
7
In the world, how many people have a rare disease?
An estimated 3 million to 4 million
An estimated 300,000 to 400,000
An estimated 300 million to 400 million
An estimated 30 million to 40 million
8
Who established Rare Disease Day?
United Nations
World Health Organization
European Organisation for Rare Diseases
National Organization for Rare Disorders
9
How many rare diseases have an approved treatment in the United States?
10%
5%
3%
20%
10
How does the European Union define a rare disease?
It affects fewer than one in 2,000 people.
It affects fewer than one in 200 people.
It affects fewer than one in 200,000 people
It affects fewer than one in 20,000 people.
11
For people who have a rare disease, how many years, on average, did they wait to get an accurate diagnosis?
6 years
4 years
2 years
8 years
12
What rare diseases are screened on the newborn screening in Texas?
Sickle Cell Disease & other Hemoglobin disorders
Congenital Adrenal Hyperplasia & Congenital Hypothyroidism
Phenylketonuria (PKU) & Galactosemia
All the Above